If you live in Colorado and have a disabled child or loved one, it's essential to find out if you're eligible for a Colorado Medicaid waiver, which potentially offers up to $100 annually in services value and extra income. Waivers create a safety net for your disabled loved one and fund services that give them the best opportunities to learn and succeed. But the waiver application process is complex and fraught with misinformation and obstacles. That's why NDC created Roadmap for the Waiver Journey, a transformational program that teaches everything you'll ever need to know to successfully apply for, and maximize, a waiver throughout all the ages and stages of your disabled loved one's life.
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How to pick the right waiver? Read on!
Published about 1 month ago • 8 min read
October 2024 NDC Monthly Newsletter
Hi Reader! First off, congratulations to the newest members of our NDC family! This month, we kicked off the inaugural 'class' of members who enrolled in our transformational new program, Roadmap for the Waiver Journey. They are now on the road to unWAIVERING 😜 success in creating the BEST life for their disabled loved one and entire family! This month, I dive into various disability funding sources and explain why waivers are ultimately the best choice. if you want more info, sign up for our upcoming Online Info Session, Wednesday, November 6th at 7pm for a deeper dive into why waivers are essential for people with disabilities!
I'm here to make YOUR life better, and I'm happy to serve!
Maureen Welch, NDC's Founder and Badass
How do you know which waiver to choose?
Which waiver should your disabled loved one be on? Colorado has 10 different waivers, four for children and six for adults, so it’s an important question!
To help NDC program participants determine this, I always start by asking: what are the biggest and most immediate needs of both the disabled individual and the family? Is it one or more of these?
Medical Medicaid coverage and covered therapies
Respite (getting a break from caregiving duties)
Income for family caregivers to stabilize basic needs (housing, utilities, transportation)
Out-of-home residential placement (short, medium or long-term)
If the dire need is medical coverage, then these are the primary ways to get needs-based Medicaid medical coverage:
The Health First Colorado Buy-In Program, which is a Medicaid program with premiums. Program details for adults and children
Long-term care Colorado Medicaid waivers HERE - waivers are the BEST option, and this is what we help families with!
If the need is emergency access to resources for basic needs, there are options for very low-income individuals or families for SNAP food assistance, as well as Aid to the Needy programs for disabled adults (the AND programs).
These options are for families with a loved one who has intellectual and developmental disabilities:
The Family Support Services Program (FSSP) supports children with intellectual and developmental disabilities/delays. FSSP’s primary purpose is to ensure that children with IDD can remain within their family setting and avoid out-of-home placements. Ask about it at your Case Management Agency .
Local Mill Levy Funding for unmet needs:If the person has an intellectual and/or developmental disability and lives in Metro Denver or Boulder, there may be funding available for your request. Ask about it at your Case Management Agency
There are other disability options, but the BEST solution is a waiver!
All of the resources listed above can be helpful in the short-term, but they all have limitations. The long-term and absolutely most beneficial solution is to get on one of the 10 Colorado Medicaid waivers!
The best way to compare the different waivers, services and eligibility criteria is to read this article. There are also comparison charts of the waivers, created by our State Medicaid agency, Colorado Healthcare Policy and Financing ‘HCPF.’ The adult waiver comparison chart link is HERE. The children’s waiver chart link is HERE
There are many nuances to choosing the right waiver for your situation! Here’s an example of how our program, Roadmap for the Waiver Journey, helped a client get the BEST waiver for their needs: An autistic adult with a brain injury was applying for the brain injury (BI) waiver. The family’s major need was funding to adapt a van to accommodate her mobile scooter. Even though the brain injury waiver appears to be the logical choice, our program taught them that the only waiver that offers funding for vehicle modification is the Supported Living Services (SLS) waiver. So, we helped the family change their request to apply for the SLS waiver instead, which offered exactly what they wanted most. Many families are seeking more therapy for their disabled children, but their incomes are over the very low Medicaid income maximum, so they do not qualify for needs-based MAGI Medicaid. The medical therapies are available in the medical State plan Medicaid, which can also be accessed through the Medicaid disabled buy-in program. There are income thresholds, but they are much more generous than the MAGI low-income limits and the State does charge a nominal monthly premium for the buy-in program.
The disabled child or adult Medicaid buy-in programs require disability determination from the State which, once approved and qualified for nursing support, also allows families to seek CNA (Certified Nursing Aide) services. This allows them to use a Medicaid-contracted home health agency. For disabled adults, having home health support can be essential in enabling them to remain living independently in the community.
Parents and family caregivers can also get certified to become the paid caregivers of their disabled loved one. This income is life-changing when a family member has stopped working outside the home due to caregiving. Their Medicaid home health agency will often pay the cost for family members to get certified as a CNA or PDN. Due to high medical needs, a disabled loved one may qualify to receive skilled nursing, called Private Duty Nursing (PDN). The income that family caregivers can earn by becoming a CNA or PDN helps families stabilize their finances and save more for retirement.
Long-term, Colorado Medicaid waivers have so many advantages over the other funding options, and that’s why we help clients get them:
Waivers only count the income and assets of the disabled applicant, versus full household income for other programs.
Any CNA or PDN Medicaid income to a live-in caregiver is tax-free on the federal IRS level.
There is peace of mind knowing that once in the waiver system, if conditions and needs change or increase, there are options for more support.
Waivers empower a person with disabilities to build skills, do activities they enjoy, and get more involved in their communities. Many waivers cover employment services and transportation–check out the comparison charts.
These two State flow charts can help you determine which waivers may be best. The adult flowchart is HERE. And the children's flowchart is HERE.
I suggest also utilizing this HCPF PAGE afterwards to dive deeply into waiver specifics.
If you want to see if waivers might be a good fit, we have an online Navigating Disability Colorado assessment for you to complete HERE .
We also encourage you to sign up for our next live online info session, which I host on Wednesday evenings at 7pm, about once a month. Visit this page for more info and to RSVP for a future session. Attendees get the first spots that open up in our transformational program, Roadmap for the Waiver Journey, which gives you unlimited access to everything you’ll ever need to know to apply for, or utilize, a Colorado Medicaid waiver.
NOVEMBER 6TH AT 7PM: BADASS INFO!
Maureen hosts a FREEinfo session where you can learn what only insiders know about the wonderful world of Colorado Medicaid waivers. After the session, participants get first rights on upcoming spots in our program, Roadmap for the Waiver Journey, which offers unlimited access to courses, coaching, resources and our online NDC community.
Roadmap for the Waiver Journey has EVERYTHING You Need to Know
If you have a disabled family member. Medicaid waivers provide peace of mind and up to $100K annually in disability services and potential family caregiver income. You can't afford NOT to apply or figure out how to use the waiver you have! Here's the problem: it's SUPER HARD to get a waiver because the process is a mess. Roadmap for the Waiver Journey helps you navigate the system successfully. It's the ONLY program that teaches you how to successfully apply for and maximize a waiver through all the ages and stages of your loved one's life.
Are you EXHAUSTED and WORRIED about these tough questions?
I'm so tired have have no time for myself; how can I get a break?
What will happen when my disabled child is done with school at age 18 - 21?
Will we have to financially support him/her forever?
What happens if I die or can no longer take care of him/her?
We need financial help! Are there benefits available to support him/her?
Is he/she ‘disabled enough’ for benefits, or does our income make us ineligible?
We have a waiver, but our case management agency is SO frustrating! How do we get help using our waiver benefits?
GET PROGRAM INFO! Click the button to get on our email list for more program info!
LIVE WITH MAUREEN! Click the button, create your NDC Community account (if you're not a member) and RSVP for the next Live Info Session. Waivers are SO valuable - don't keep losing time that you could be accessing SO many life-changing benefits!
The Centers for Medicare & Medicaid Services issued new guidance in a 57-page letter to the States on Early and Periodic Screening, Diagnostic and Treatment (EPSDT) requirements. The mandate will help ensure that children participating in Medicaid and the Children’s Health Insurance Program have access to a broad array of prevention, diagnostic and treatment services. This is a big win for children with disabilities! Read the article at Disability Scoop (you get two free reads!).
Alexa, Norma's daughter, got on a waiver and is now enjoying support services such as swim lessons, a paid service dog, massage therapy and more! Our program also showed Norma how to become a Certified Nursing Aide for her daughter so they can take care of her better while earning additional income! You can learn how to get all these things for your disabled child in our program, Roadmap for the Waiver Journey!
Are you getting the MOST from your waiver? Take This Assessment!
If you already have a waiver, you could probably be getting way more from your service plan! Answer quick questions and get our expert recommendation about whether or not you may need to maximize your waiver. You'll be asked to submit your email address again in order to access this - but it's well worth it your time!
Medical Services Board Meeting: Be Heard and Participate!
The Colorado Department of Health Care Policy & Financing (HCPF) oversees Colorado's Medicaid program. They host many public meetings that empower you to get involved, give input and become a stronger advocate for your disabled loved one!
Medical Services Board November 15th at 9am MST The Medical Services Board adopts the rules that govern the Department's programs. The Board's eleven members include at least one member from each congressional district and no more than six members from the same political party. Members are appointed by the Governor. Meetings are open to the public and you can participate.
About Navigating Disability Colorado NDC is an independent advocacy company that empowers the disability community to successfully advocate for their rights within Colorado’s complex system of disability services. We offer Colorado’s only step-by-step online courses in how to apply for a Colorado Medicaid waiver and maximize its benefits so that disabled people and their families can live their best lives. NDC’s services provide information and education and do not constitute legal advice.
If you live in Colorado and have a disabled child or loved one, it's essential to find out if you're eligible for a Colorado Medicaid waiver, which potentially offers up to $100 annually in services value and extra income. Waivers create a safety net for your disabled loved one and fund services that give them the best opportunities to learn and succeed. But the waiver application process is complex and fraught with misinformation and obstacles. That's why NDC created Roadmap for the Waiver Journey, a transformational program that teaches everything you'll ever need to know to successfully apply for, and maximize, a waiver throughout all the ages and stages of your disabled loved one's life.
November 2024 NDC Monthly Newsletter Hi Reader! If you take care of your disabled loved one, did you know that a waiver might allow you to get paid for the care you're already providing? This can be a big boost for your annual income! Read on for steps and details! if you want more info, sign up for our upcoming Online Info Session, Wednesday, December 4th at 7pm for a deeper dive into waivers. And if you're a paid caregiving seeking new job opportunities, or a family seeking care, be sure to...
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